Mila lives with a rare gene mutation called STXBP1, but her story is about strength, joy, and love—not a diagnosis. If you’ve been here from the beginning or just found us… what’s something you love about Mila? 🤍 #reels #shorts #viral | Mila Johnson
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Mila lives with a rare gene mutation called STXBP1, but her story is about strength, joy, and love—not a diagnosis. If you’ve been here from the beginning or just found us… what’s something you love about Mila? 🤍 #reels #shorts #viral | Mila Johnson
258.9K views4 months ago
FacebookMila Johnson
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Functionalhand on Instagram: "Mila has a rare genetic disorder called STXBP1. She and her mom are traveling to Panama for stem cell therapy. Follow her journey and updates at milas_crew. #STXBP1 #RareDiseaseAwareness #StemCellJourney #SpecialNeedsFamily #MilaStrong 🤍 #functionalhand.com #occupationaltherapist #physicaltherapy"
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Functionalhand on Instagram: "Mila has a rare genetic disorder called STXBP1. She and her mom are traveling to Panama for stem cell therapy. Follow her journey and updates at milas_crew. #STXBP1 #RareDiseaseAwareness #StemCellJourney #SpecialNeedsFamily #MilaStrong 🤍 #functionalhand.com #occupationaltherapist #physicaltherapy"
1.2K views3 months ago
Instagramfunctionalhand
Johnson’s on Instagram: "If you’ve never heard of STXBP1… this is your sign to learn 🧬 STXBP1 is a rare genetic neurological disorder that affects how the brain communicates with the body. It often impacts movement, development, and can cause seizures. For kids like Mila, nothing comes automatically. Every movement takes effort. Every milestone takes time, repetition, and a lot of therapy. But STXBP1 doesn’t define who she is. She feels joy. She recognizes love. She tries every single da
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Johnson’s on Instagram: "If you’ve never heard of STXBP1… this is your sign to learn 🧬 STXBP1 is a rare genetic neurological disorder that affects how the brain communicates with the body. It often impacts movement, development, and can cause seizures. For kids like Mila, nothing comes automatically. Every movement takes effort. Every milestone takes time, repetition, and a lot of therapy. But STXBP1 doesn’t define who she is. She feels joy. She recognizes love. She tries every single da
650.6K views4 months ago
Instagrammilas_crew
Johnson’s | They told me she’d never move, never grow, never surprise us… because of her STXBP1 gene mutation. But look at her now — a completely... | Instagram
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Johnson’s | They told me she’d never move, never grow, never surprise us… because of her STXBP1 gene mutation. But look at her now — a completely... | Instagram
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Instagrammilas_crew
Johnson’s on Instagram: "STXBP1 milestones look different — and that’s okay. Milestones don’t come easy, but they come.🥹2025 has been the best year for Mila ❤️#reels #shorts #viral #love #instagram"
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Johnson’s on Instagram: "STXBP1 milestones look different — and that’s okay. Milestones don’t come easy, but they come.🥹2025 has been the best year for Mila ❤️#reels #shorts #viral #love #instagram"
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Instagrammilas_crew
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We are so very grateful to the doctors who listened to us and took us seriously when we brought them our precious little girl. She was lucky enough to find the right medication on the first try. She takes Keppra everyday, morning and night and she will take it until her doctors say otherwise. #stxbp1 #medicine #seizures #baby #doctor
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Bloodlines of the Elite part 1 The ruling elite are not regular humans. They are an inbred Satanic bloodline with alien-like Rh-negative DNA that makes them genetically incompatible with normal people.Their blood carries a cannibalistic mutation. An Rh-negative mother’s antibodies attack and destroy an Rh-positive fetus the same way they would a virus. This is why mules (horse + donkey hybrids) are sterile and why their careful inbreeding is required for viable offspring. Most of their babies di
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leigh ann on Instagram: "GO LUCY GO! 🙌🏻💙 I’m so beyond proud of this girl! It’s officially our last day of her DMI therapy intensive and she has gained so much strength and stability. She pushes with all her might and always tries her best and after twenty sessions in two weeks her hard work is really showing 😭 #stxbp1 @onthefly_dmi @palm.peds #stxbp1strong"
252.5K viewsMay 19, 2023
Instagramleighannsays
leigh ann on Instagram: "GO LUCY BUG 🙌🏻🏋🏼‍♀️ Did you work out 10 hours this week? I know I didn’t but she did! Progress is slow by the world’s standards but in our house every millimeter is worthy of celebration! Did you see how she just decided to go all the way up at the end?! That came out of nowhere 🤯 She also worked hard on using her right hand, transitions into sitting and strength in all fours/standing. thank you again @therahappy your support is unmatched! 💙🧬 #Lucyslight #stxbp1 #
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Instagramleighannsays
Johnson’s on Instagram: "Tea around the town in Chicago with my favorite people ☕️💛 Such a lovely day full of smiles, good company, and cozy vibes. #teaaroundtown #shorts #reels #stxbp1 #rare #milas_crew #viral #medicalmom @teaaroundtownnyc"
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